Not at my house this afternoon

I had to place my son in a host home 7 mos ago, or he was going to be taken away from me because of my health and the fact that I have no one to take him in case I couldn't watch him any more.  It breaks my heart that I have only been able to see him less than 10 time in the past 7mos.  It was finally all set up to have a respite care worker bring him over for 2 hrs. today but she called the host home mom and said she was sick.  If she doesn't show up next week I am turning it over to his case manager!  The financing for this was approved at least 3 mos ago but the host agency gave me the wrong phone number,  I was leaving her messages every week begging her to get back to me.  I don't understand why the new person with the number didn't have the courtesy to call me and tell me that she no longer had that number.  Maybe they only speak Spanish.   Anyway I am crushed and crying today. Meanwhile the man I've been dating for the past 9 yrs. is taking another woman friend to the Museum of Natural Arts to see the King Tut .  She doesn't drive so she asked him to take her.  My BF lived with her and her husband for 9 yrs. now they have split up after something like 16 years so she is helpless.  I told him to be careful she is going to latch on to him, she'll be calling for him to help her all the time.  I don't like it at all but what am I to do?  It's not like I can hop up out of bed and go with them.  Of course I wouldn't have done that today since my son was SUPPOSED to be here for 2 hours today.  My respite care is set up for only 2 hours a week.  I have a total of 8 hrs a month paid for so I chose to see him once a week.  His brother and I watched him 24/7 for almost 22 years.
Sorry I gotta go for now I need to play a game to get my mind off of everything.  While your here please ck out my blog on darlenesads.blogspot.com and fill out some leads for me or do some surveys so I can earn some money to pay to my own person I find to go pick him up and come help watch him.  TIA
Darlene

my am visit today

My am aid made me a couple of hamburgers for lunch but I would have only wanted one of them if the buns had been any good but they were freezer burned (barely), but I thought if she defrosted them they would have been editable but they weren't so I tried to eat the meat and tomatoes and pickles but the meat was extra lean and I chewed and chewed and it just sat there in my mouth and it was so dry I kept choking on it.  Needless to say I didn't finish it.  NO wonder I am loosing so much weight.  The last time I checked I had lost  35 lbs since April 15th when the hospital finally took me off my Lyricia that made me gain 100 lbs in 3 years I was on it.  I am so relieved to be off of that!  Tonight I am going to try to redo my chili for dinner.  That's about all I've got for you today.
Sending every one best wishes for all they need and some of what they want. :-)

My aid today

My aid made canned chili and I told her to put it in the digital pressure cooker/crockpot she put it in there and filled the pot to the max full line with water.  I just assumed she would KNOW that it was already cooked it just needed to stay warm for my dinner tonight.  I had her dump out all the water out and add a can of tomato sauce, chili powder and cumin, if it is still too runny I will have my night time aid add a can of tomato soup and more spices and see if that helps.  I'm sure it will turn out eventually LOL  I forget that people don't know how to use all of my appliances. I am a totally addicted to kitchen appliances. One aid totally unloaded my stove which is filled to use as storage.  I have cooked everything in a toaster oven for maybe 10 yrs now at least that long.  I MAY have used my beautiful new oven (in the one house I had) 4-5 times to make cookies.  It all started when my oven went out 10 yr/s ago.  The first oven didn't really go out the electronic ignition went out and the stove was so old we couldn't find the part to fix it, it was just too hard for me to bend down to light it with a match so I quit using it. I had a microwave with a convection oven in it and that was all I needed.  I usually just cooked one pot meals on the stove or heated up casseroles in the convection oven now I just use a toaster oven, my stovetop or my digital pressure cooker.  My aids are usually only cooking for me so we usually have extra for the freezer.

good help

The girls I have working with me now seem to be really good. I just pray they stay.  The morning girl said she would work 7 days a week but she put in 79 1/2  hrs last week so now she is thinking she wants to take the weekends off or at least Sundays.
I just sent her to the grocery store for the first time, but I think she will do fine.  Our store is one of those big super stores and it is pretty overwhelming.  She is complaining about having a sore left arm for the past 2 days.  I hope it's not her heart! I felt guilty sending her to the store.   I always feel guilty when my girls have any kind of pain because I am in pain everyday of my life and working would be the farthest thing from my mind if I could.  If she gets back in time I am going to have her make a pot of chili we are having some cooler weather the next couple of days.  I had some really good chicken broth with tomatoes w/green chilies made up yesterday but the aid last night took it out of the Crockpot and left it out to cool and forgot to put it in the fridge before she left so I'll have to throw that out too.  I hate wasting good food even if it was just a killer chicken broth.  Last night I just had the broth w/ a couple of spoonfuls of cooked macaroni in it.
I hope everyone is having a great day.
Darlene

getting out today

My PCP came early today to help me get ready to go to my Dr. apt.  I took 4 bites of my pancakes 2 sips of coffee (mostly vanilla creamer) and my stomach started turning.  I told my Dr. about my stomach hurting almost every time I eat anything, so he gave me a test for  Ceilicas  (SP) which is and gluten intolerance.  He also put me on a medicine for my IBS I have never had medicine for that and I have had it for over 30 years.  He is also going to send me to an Endocrinologist to get a biopsy of that and  to check on my Barracks disease which is pre cancer of the esophagus.  He sends me to some kind of a specialist almost every time I've seen him.  At least he is through and I am getting him to listen to me.  I hoping he is going to be a keeper,
My good CNA was at my Dr.s office and when I came out she told me they think she has strep.  She has been coming over here and has been complaining about having an ear ache and jaw pain but never said a word about having a sore throat. I sure hope I don't get it!
I was hurting so bad I didn't even want to stay out and go to Wal Mart and I love going there just to look for food deals, so my friend brought me all the way home and then went back out to do her errands.  I got a really bad Charlie horse in my left leg  just as I was ready to get into the car just as I was going to go ahead and try to get in the car I got a really bad one in the right leg.  It took me at least 6 mins to get in my own mini van.  I can't even get in a reg car any day of the week. The strange thing is I had 2 vaillum and a Vicodin in me.

I knew it was too good to be true

The  PCP that I really like worked 2 days and called in sick today.  I guess I'd rather she did that than come in and get me sick.  At least the sub speaks English very well.  That has been a real problem.  They would stand there and smile at me and say they understood what I wanted and then do something completely different.  At least today was good, and for that I am thankful.

I guess the good help is still here today

My aid this morning made some really good breakfast burritos for the freezer I had one with leftover gr. chili I have enough gr. chili for one more and we will still have several burritos in the freezer.  Tonight I am going to have a simple supper of kind of a egg drop soup without the eggs. It will have chicken broth  If I am still hungry I will have a fried chicken patty sandwich.

When she finished cooking and cleaning up the kitchen she cleaned the mirrors in my bedroom and bathroom and the TV screen.  Boy was that dirty! BTW my kitchen is totally under her control now.  Plop plop fizz fizz oh what a relief it is! :-)